Life for this shy but sweet 5 year old is filled with medical complications, surgeries and hospital stays. Born during the pandemic, challenges started early with hypertonia and failure to thrive but he could not be properly assessed until 6 months of age when he was still not eating well and not meeting his developmental milestones. Now diagnosed with 2 severe connective tissue disorders, Marfan’s and Ehlers Danlos Syndrome that affect his major organs and have led to an aneurysm in his heart. He also lives with a G/J tube, anisocoria, autism and mastocytosis among numerous other complications.
This brave boy enjoys spending time with his family, especially his older brothers, swimming, the splash park, the zoo, riding bikes and hanging out at WEM and the space science center. Above all else he LOVES Mario Kart and Pokemon.
Alberta Dreams cannot wait for this young boy and his family to create wonderful lasting memories and to jump on it to life-sized Super Nintendo World in Florida.