Like his sister, this bold and creative boy was also diagnosed with Glycogen Storage Disease type IX at just 2 years of age, also requiring multiple visit to the emergency room each month. This otherwise happy 7-year-old enjoys Lego, tobogganing, skateboarding, and playing outside. Most of all he likes to watch online gaming videos on You-Tube. He will be thrilled with the opportunity to not just watch videos of gaming but to get online himself with his very own gaming computer system.