Born early at just 4 lbs, this now 8 year old was tube fed by 2 months and early genetic testing came back with the only known case of X13 duplication. By 6 months he was diagnosed with hydrocephalus and tracheomalacia and by 10 months he had surgery for a permanent G-tube. During his stay in hospital he contracted RSV and C-Diff and had a PICC line, which is when they learned he had a clotting disorder that resulted in a pulmonary embolism. He was in the ICU and on a ventilator for 2 more weeks and spent his first birthday in hospital. Soon after, he began having seizures and suffered an extreme overdose of antiseizure medication due to a pharmacy error. The combination of his unknown genetic condition and lasting damage from the complicated events early on have left this boy non-verbal, with global developmental delay, autism, scoliosis, and low central muscle tone.
This resilient young boy likes animals and enjoys being outside swimming, the splash park, the petting zoo, and bouncy houses.
Alberta Dreams cannot wait to help create some wonderful memories for him and his family with a dream come true trip to Disney World.